I have been honored to follow the blog of Nora Rose, a precious baby girl born with a very rare condition, she and her family have been an amazing joy to get to know over the last 2 years, via the amazing blog posts her Mum Aleisa shared with us all via her blog “I will Carry you”
Last week Nora passed from this world to the next surrounded by her loving family, I can’t tell you how much I have enjoyed this precious babies updates, sharing in the joy that was her life.
We will all miss her so dearly, we will miss her Nor Nor updates, the joy and love her family shared with us, the witness they all are.
This was Nora Rose’s Aunties tribute to Nora at her Funeral service, I think its speaks volumes of the joy and love she brought to everyone she touched.
Yeap I am neglecting this little blog again and really have no excuses.
Recently I have recently found out that a few people have learn’t alot about Cape York though this blog and even followed us before they moved here. I have to admit I was kinda excited to know anyone is following here on my Little Blog…….let alone that I helped in some small way to make their transition easier.
So because of that I thought I would try my hardest to update here on a more regular basis. I really had no idea people would want to hear about our everyday.
Also if there is anything you would like to know about, PLEASE let me know by sending me email or go over to the facebook page and I will to my best to do a blog post about it.
So most of you by looking (or not) at my Second Eldest son’s picutres would of likely realised he has Down Syndrome…….I do not talk about it much because well, its really a NON issue for us for the most part. Well that was until recently when all over the so called modern world a movement to make kids like Jack a thing of the past started to build a small amount of support.
I am not going to go in to right now, but it woke me up, it made us as parents realise that if we make DS a non issue people will not only not see Jack for Jack but, also not see him as the amazing vibrant teenager that he has become…….
We personally think that parents being offered a “choice” earlier and earlier in pregnancy need to see that DS for the most part is really only a very small part of who our kids are…….SO I am going to document Jacks life more, I have also started a facebook page Called ******Hello WORLD – Jack Speaking****** I will put a link to it up shortly.
Jack really just lives a ordinary life, but I guess that is just what alot of expectant parents want to hear/see.
So come join us on the facebook, share it with your friends……and lets Celebrate being having Down Syndrome and lots of ordinary!!
Jacks Second Place Medal from a triathlon he recently competed in.